Research
Current Projects
The core of our work includes research in the areas of demography, long-term care, program evaluation, the aging workforce, and arts and dementia programming. View our current projects below.
National Endowment for the Arts
Principal Investigator: Elizabeth Lokon
September 1, 2022 through August 31, 2024
Regents of the University of Michigan, pass through funds from the National Highway Traffic and Safety Administration
Principal Investigator: Jonathon Vivoda
December 13, 2024 through December 12, 2029
This research involves the development, demonstration, and evaluation of employer-based driving safety programs. Programs in three areas will be developed: seat belt use, drowsy driving, and distracted driving. The goal of the research is to provide safety benefits in these areas for employers who implement the programs developed during the project, among their employee drivers.
Cincinnati Music & Wellness Coalition
Principal Investigator: Robert Graham
February 1, 2025 through June 30, 2025
HealthRhythms is a tool that has been shown through multiple trials to be effective in reducing stress and promoting well-being. The normal program involves one-hour sessions for six weeks with a trained facilitator in a group setting. We propose to test HealthRhythms with two groups of caregivers in cooperation with the Cincinnati Music and Wellness Coalition (CMWC) and Catholic Charities. Catholic Charities will recruit 20 caregivers who have not participated in HealthRhythms before.
Clermont Senior Services, Inc.
Principal Investigator: Robert Graham and Ian Matthew Nelson
February 1, 2025 through June 30, 2025
While we celebrate the increased longevity of the county’s population, the growth in the number of older people is also accompanied by an increased need for long-term services. The proposed study will include three major components. In the first phase we will use the recently released 2020 Census, data from the American Community Survey (ACS), and data on disability available from the National Health and Aging Trends Study (NHATS) to examine aging and disability in Clermont County. In the second component of the study we will examine long-term services utilization in the county in the context of the current and future demographic patterns for the older population. In the final component of the study the potential long-term services use patterns for the county and projections about the future demand for ESP services will be estimated for 2030 and 2040.
Council on Aging of Southwestern Ohio
Principal Investigator: Jonathon Vivoda
November 1, 2024 through October 31, 2025
The Council on Aging of Southwestern Ohio (COA) supports programs to help older adults in their service area. Within the COA’s service area, numerous individual providers deliver home care, home delivered meals, and transportation services. Satisfaction with such services is assessed using the Service Adequacy & Satisfaction Instrument (SASI) tool. In recent years, changes have allowed for clients to engage in consumer-directed care and laundry services, issues not included in the original SASI. The primary goals of this study are to assess the existing SASI tool, then develop and validate new items to add to the SASI that assess consumer-directed care and laundry services (as well as any new areas of consumer expectations).
Ohio Department of Mental Health and Addiction Services
Principal Investigator: Saruna Ghimire
March 6, 2025 through June 30, 2025
Resettled refugees in the United States face significant mental health challenges, including high rates of depression, anxiety, and post-traumatic stress disorder. Despite this, their utilization of mental health services is low due to various barriers such as cultural, economic, and language obstacles, as well as gaps in culturally responsive services. Scholars attribute the low utilization of mental health services to the Western models of care that overlook refugees' unique experiences and cultural beliefs about illness and recommend the development of culturally responsive interventions and services. To address this issue, our study aims to design and evaluate a peer-led, culturally tailored intervention for immigrants and refugees.
USAging, pass through funds from the U.S. Department of Health and Human Services.
Principal Investigator: Heather Menne
October 1, 2024 through September 30, 2025
The ACL: Aging Network Care Navigation Services project collects national data on the care navigation activities of the national network of Area Agencies on Aging and Title VI organizations serving tribal elders, evaluates the delivery of care navigation services, and creates replication toolkit's for promising care navigation models.
USAging, pass through funds from the U.S. Department of Health and Human Services
Principal Investigator: Heather Menne
September 1, 2024 through August 31, 2025
The Information and Planning project collects national data on the activities and community positioning of the national network of Area Agencies on Aging and Title VI organizations serving tribal elders. The data collected from the surveys informs a broad array of technical assistance strategies and resources developed and deployed, also under the auspices of this grant, by USAging to assist aging network organizations in maximizing their effectiveness.
Linked Senior Inc., pass through funds from the U.S. Department of Health and Human Services
Principal Investigator: Anthony Sterns and Katherine Abbott
July 5, 2024 through June 30, 2025
For over 30 years, culture change initiatives have attempted to transition the way health care is provided from the medical model, where care is provided according to what works best for the organization and staff, to a person-centered model. Person-centered care is an approach that emphasizes “knowing the person” and honoring each individual’s preferences. The Centers for Medicare and Medicaid Services (CMS), the largest payer of long-term services and supports (LTSS), has supported person-centered care (PCC) via federally mandated regulations. However, there continues to be a lack of progress in providing PCC to older adults receiving LTSS. Knowledge of a resident’s everyday care preferences provides the foundation for ongoing individualized care planning. Evidence suggests that individualized care is an important element in quality of life models and results in enhanced well-being. In addition, honoring preferences empowers residents/clients, helping them to maximize their potential for retaining relationships, capabilities, interests and skills by acknowledging what they prefer in the context of their strengths and needs. In order for providers to shift toward delivering PCC, they need timely, efficient methods to gauge whether consumers are satisfied that their preferences are being met while also identifying priorities for improvement. The Preference
Based Living research team has collaborated with Linked Senior, a resident engagement software platform, to build this software called Care Preference Assessment of Satisfaction or ComPASS-16™. ComPASS-16 combines mandated preference assessment with additional details for important preferences to integrate into the plan of care and facilitates asking consumers about how satisfied they are that their important preferences have been met as a quality assurance, performance improvement (QAPI) process measure. This project will focus on establishing the feasibility of overcoming institutional barriers and achieving preference-based care for the 1 million older adults who reside in nursing homes and over 800,000 who reside in assisted living communities through a demonstration of the impact of technology.
Emory University, pass through funds from the U.S. Department of Health and Human Services
Principal Investigator: John Bowblis
September 1, 2024 through May 31, 2025
This study will examine the role of memory care units in nursing homes and its interaction with race/ethnicity of residents and quality of care.
Oak Park-River Forest Community Foundation.
Principal Investigators: Heather Menne and Jennifer Kinney.
March 17, 2025 through December 31, 2025.
The Kott Gerontology Scholars Program (KGSP) provides internship scholarships to promising advanced degree graduate students interested in the aging field who are attending Chicagoland area universities. The KGSP encourages and supports graduate students in a variety of professional specializations to develop skills that will engage and prepare them to continue working with and on behalf of older adults after graduation. For this project, Scripps Gerontology Center will a) assess the impact of KGSP on scholars’ career trajectories and professional development and b) evaluate the engagement and effectiveness of KGSP with partners’ agencies. Findings will inform recommendations on future efforts to support students preparing to work with and on behalf of older adults.
Council on Aging of Southwestern Ohio
Principal Investigator: Leah Janssen, Robert Applebaum
December 29, 2022 through June 30, 2024
The prevalence of substance abuse among older adults has been steadily increasing. However, older adults are screened, assessed, and treated for substance use disorders (SUDs) at a much lower rate than their younger counterparts. Those who are treated for SUDs face an array of barriers including limited resources, lacking recognition from medical professionals, and stigma. As a result, the Positive Choices program was developed to provide care-management for older adults with SUDs and help them achieve their long-term health-related goals. Through the use of 12 in-depth interviews with day-to-day program personnel, this study sought to better understand the program, highlight strengths, and identify opportunities for growth. Descriptive data was also collected to describe the demographic characteristics of Positive Choices enrollees. Thematic analysis revealed the program succeeded in building trust with members, providing resources, utilizing evidence-based tools, and providing timely communication. These strengths are coupled with opportunities to improve the program by continuing to destigmatize SUDs among older people. These findings reveal the critical role care-management plays in supporting older people with SUDs. Other programs working with this population should consider the results of this evaluation to ensure older adults with SUDs are best supported in the future.
Pennsylvania State University, pass through from Alzheimer's Association
Principal Investigator: Katherine Abbott
May 1, 2023 through April 30, 2025
The Preference Match Tracker (PMT) is a pragmatic tool that measures recreational preference congruence (RPC), that is the number of recreational activities nursing home (NH) residents attend that match their stated preferences, across the continuum of cognitive ability. The objectives of this project are to utilize an existing dataset to: (1) test the impact of RPC as measured by PMT on well-being (depressive symptoms, functional ability, pain) for NH residents with varying levels of cognitive ability; and (2) determine if typologies of NH residents based on PMT data differ on well-being outcomes. We are using a de-identified dataset with 5 years of RPC data from 593 residents from a NH that has been tracking RPC data for over 8 years.
The aims of this project are as follows: AIM 1: Determine the association of activity attendance and RPC attendance with depressive symptoms, functional ability, and pain over time for persons at different levels of cognitive ability. We hypothesize that more frequent activity attendance will be associated with fewer depressive symptoms, greater functional ability, and less pain. More frequent RPC attendance will be associated with even lower depressive symptoms, greater functional ability, and less pain. Preliminary studies suggest that results will not differ by baseline resident cognitive ability. AIM 2: Determine if typologies of NH residents based on attendance patterns experience differential levels of depressive symptoms, functional ability, and/or pain over time. We hypothesize that preferred attenders (i.e., those who attend what they prefer and do not attend what they do not prefer) will display the highest levels of well-being over time when compared to individuals who decline activities at a higher rate (i.e., decliners) or attend a greater proportion of non-preferred activities (i.e., general attenders). If differences are present, we will describe groups based on demographic and baseline clinical attributes, including cognition.
Regents of the University of California, San Francisco, pass through funds from the National Institute on Aging
Principal Investigator: Suzanne Kunkel
April 1, 2022 through January 31, 2023
Ohio Department of Aging
Principal Investigators: Robert Applebaum, Ian Matthew Nelson, and John Bowblis
October 23, 2023 through June 30, 2025
The Scripps Gerontology Center has been involved in studying the long-term services system in Ohio for the past three decades. In this phase of the project, we will provide data in three areas as part of our ongoing effort to assist Ohio Department of Aging (ODA) in efforts to improve the lives of older Ohioans with disability. Study components include; a continuation of the Biennial Survey (15th wave), an in-depth analysis and recommendations addressing the direct care workforce challenges in the long-term services area, and a description and understanding of the impacts of Ohio’s locally funded initiatives for older people. The study investigators are Robert Applebaum, Matt Nelson, and John Bowblis.
The Ohio State University (OSU), pass through funds from Department of Health & Human Services and Ohio Department of Medicaid.
Principal Investigators: Robert Applebaum, Jennifer Heston-Mullins, and John Bowblis
July 1, 2023 through June 30, 2025
In 2014, Ohio implemented a demonstration designed to integrate Medicare and Medicaid services for older adults. This study is an evaluation of the MyCare demonstration effort to assist state policy makers in determining program effectiveness.
Brown University, pass through from NIH
Principal Investigator: Katherine Abbott
March 1, 2023 through June 30, 2024
Over 75% of people living with dementia (PLWD) experience psychological and behavioral symptoms of distress. Expressions of distress can be both upsetting to the individual and care providers. Symptoms of distress can include wandering, persistent vocalizations, and resistance or refusal of care. In addition, depressive symptoms are common among nursing home (NH) residents living with dementia. However, easy to use evidence-based interventions that take a person-centered approach to addressing these concerns are limited. Care partners (e.g., Certified Nursing Assistants) in NHs struggle to prevent or positively respond to distress and/or depressive symptoms experienced by PLWD. The Individualized Positive Psychosocial Intervention (IPPI) is an evidence-based program that engages PLWD in brief (i.e.,10 minute) one-to-one preference-based activities 2 times a week. To provide IPPI, care partners first complete an online course on emotion-focused communication. This course improves care partners’ emotional communication skills to be able to build stronger relationships and provide more positive care experiences for PLWD and care partners, alike. The care partners are then trained to deliver IPPI activities via short protocols to guide brief one-on-one interactions with PLWD. The 59 unique protocols give concrete ways to interact with PLWD and are matched to important preferences that are routinely assessed by NH staff. For example, if a person says it is important to be able to listen to music she likes, the care partner can select a protocol to interact with the individual around music. The interactions provide meaningful, preferred activities to PLWD and seek to decrease distress and/or depressive symptoms in PLWD. A previous Hybrid III trial of the IPPI program in NH found PLWD had fewer negative emotional and behavioral responses when receiving IPPI compared to those receiving usual care interventions. Our goal with this proposal is to deploy the IPPI program so that care providers use this program as a part of their routine care delivery. We will partner with United Church Homes, a 106-year-old nonprofit national senior living provider to train staff to use the IPPI program in 9 NHs. Staff in each nursing home will identify any resident, regardless of age, race, gender, or ethnicity, who is ideal for the IPPI program, that is, residents who have cognitive impairment and have experienced symptoms of distress or depressive symptoms within the past 2 weeks. This study will include 108-135 residents and care partners, working any shift, who provide routine care to them. We will (1) track fidelity in staff doing key intervention tasks, (2) track symptoms of distress and/or depression in PLWD over time and (3) examine facilitators and barriers from the perspective of the stakeholder teams doing the IPPI program. Our goal is that the IPPI program will be feasible to deliver and done with fidelity comparable to the original trial. We anticipate that PLWD receiving the IPPI program will experience a decrease in symptoms of distress and/or depressive symptoms. Findings from this study will help us develop a larger project that tests the use of the IPPI program in a fully powered NH trial.
Principal Investigator: John Bowblis
June 1, 2023 through May 31, 2027
The Ohio State University, pass through funds from the Ohio Department of Medicaid and the U.S. Department of Health and Human Service
Principal Investigator: Matt Nelson
October 1, 2023 through June 30, 2025
This study will involve the development of a chart book highlighting older people in Ohio using data generated from the 2023 Ohio Medicaid Assessment Survey. In addition to being an author on the Chart book, the study investigator will work with OMAS researchers on the design of future survey questions and on analysis.
Principal Investigator: Jennifer Heston-Mullins
February 1, 2023 through December 31, 2023
Arthur N. Rupe Foundation
Principal Investigator: Meghan Young
January 1, 2024 through December 31, 2024
This project focuses on expanding OMA’s reach into respite care while highlighting an important collaboration between OMA and the Respite For All Foundation. The project, ultimately, seeks to equip respite care providers with more training and education on best practices when working with people living with dementia.
Retirement Research Foundation (RRF)
Principal Investigator: Meghan Young and Elizabeth Lokon
January 1, 2024 through December 31, 2025
This study aims to measure the impact of ScrippsAVID, an Arts-based, Virtual, Intergenerational, and Dementia-friendly video-chat platform, on reducing loneliness and addressing ageism. This study is essential in ScrippsAVID’s national dissemination while offering insights into the viability of virtual programming in promoting social and intergenerational connections for older adults, including those living with dementia and their care partners.
Principal Investigator: John Bowblis
March 1, 2022 through September 28, 2026
Ohio Department of Aging (ODA)
Principal Investigator: Katherine Abbott
February 22, 2024 through June 30, 2025
We submit a proposal for consulting services and deliverables to assist the Ohio Department of Aging in building a curriculum addressing one of the four key topic areas identified in the recent The Ohio Governor’s Nursing Home Quality and Accountability Task Force’s report: Medication Optimization. Our proposal outlines the scope of work, timeline, and deliverables to meet your desired outcomes. Scope of Work: We propose developing the first module of a comprehensive curriculum, promoting a person-centered, QAPI-informed approach, focusing on the following first key area:Medication Optimization
Timeline: Given the ambitious timeline, we propose a phased approach:
March 1, 2024: Delivery of QAPI materials for the introduction material
March 22, 2024: Completion of content for the first two modules (Introduction to Medications and Prescribing Medications)
April 26, 2024: Completion of content for the remaining two modules (Medication Review/Assessment and Behavior Monitoring)
Deliverables: Each module within the first topic/content area will consist of the following components:
- Webinar Content: A PowerPoint presentation that can be used for live and recorded sessions, covering essential information on each topic area Each module on the respective content area will include one hour narrated slide presentations for target audience
- Practical Demonstration: Role-playing scenarios using case studies in the form of demonstrations, discussions and best practices. Interactive conversations to reinforce practical skillsReadings/resources as comprehensive collection of existing and trusted resources to enhance understanding
- Evaluation Include pretest and post test for each module Questions for reflection throughout each module
Learning Outcomes: Objectives and topics for Medication Optimization Module will include:
Module 1: Introduction to Unnecessary Medications
- Objective 1: Introduction to Medications
- Objective 2: Polypharmacy and Best Standards of Care
Module 2: Prescribing Medications
- Objective 1: Commonly Used Medications
- Objective 2: Monitoring and Assessing
Module 3: Medication Review and Assessment
- Objective 1: Best Practices Medication Management, Storage and Use
- Objective 2: Staff Education on Appropriate Medication Use (QAPI)
Module 4: Behavior Monitoring
- Objective 1: Classification of Medications and Reason for Use
The Donaghue Foundation
Principal Investigator: Katherine Abbott
March 15, 2024 through September 15, 2025
- The original project allowed us to advance understanding of the impact of implementing the Preferences for Everyday Living Inventory (PELI) in Ohio nursing homes. We validated a pragmatic indicator of extent of PELI implementation and explored the organizational characteristics associated with communities that fully implement the PELI. We found that NHs fully implementing the PELI were more likely to have a 4- or 5- star deficiency star rating, lower deficiency scores, and were more likely to be deficiency-free. NHs fully implementing the PELI were less likely to have any complaints and any substantiated complaints compared to partial PELI implementers.
- We can confidently state that providers who fully implement the PELI through assessing resident preferences, integrating preferences into care plans, and evaluating their efforts have better outcomes than providers who do none or only partial PELI implementation. This is a systemic approach to preference-based care that we intend to advance using the R3 funds to disseminate and broaden adoption. While the data we used comes from Ohio nursing homes, we have evidence to show that Ohio providers are representative of providers nationwide. The nature of nursing home regulations create continuity from state to state.
- We have limited information on the implementation strategies nursing homes use to fully implement the PELI. A detailed description (e.g., case study) of how organizations of different resource levels (e.g., star ratings) approach implementation would assist us in developing necessary tools and resources for NH providers seeking to adopt this approach. Identifying the strategies necessary to achieve full PELI implementation will promote replication and scalability. In addition, our stakeholders have consistently told us that we need to better
communicate our findings. However, our dissemination through peer-review journals is not an effective mode to communicate to providers. We need to be able to effectively communicate the value proposition of fully implementing the PELI and determine the optimal communication channels to reach NH decision makers. - We propose to conduct in-depth qualitative interviews with approximately 10% of Ohio NHs that have fully implemented the PELI. The 2021 Ohio Biennial Survey that is completed by all NHs in the state, had n=182 communities who self-identified as Full PELI implementors (e.g., use information gathered from the PELI in care management and/or quality initiatives). We would start by reaching out to the Nursing Home Administrators of these communities via a Qualtrics survey to identify if they still consider themselves full PELI implementors. If they respond “yes” we will ask if they would be willing to participate in the study in exchange for $500. To the extent possible, we will attempt to stratify the sample by the organizational characteristics we found predictive of full PELI implementation. 2 For example, our implementation work thus far has indicated that the feasibility of uptake is related to resources (e.g., proxy indicator is star ratings). Therefore, our goal would be to highlight implementation case studies for low, medium, and highly resourced communities. Of the OH NHs that are still fully implementing the PELI, we would ask to do a one day, in-person visit to conduct interviews with the individuals who were most closely involved in the PELI implementation at the care community. We would compensate each provider $500 for the visit and craft a semi-structured interview guide using the Consolidated Framework for Implementation Research (CFIR). Interviews could be in the form of focus
groups or individual interviews, depending upon staff availability. We would conduct a thematic analysis across the cases (cross-case analysis) to identify the logical steps or stages of full implementation that can be replicated or followed by other communities. Our knowledge owners (a.k.a. stakeholders) have consistently told us that we need to communicate our findings more widely. However, our training to disseminate through peer-review journals is not an effective mode to communicate to NH providers. Therefore, we would then work with John Beilenson, president of Strategic Communications and Planning (SCP), to craft a clear and compelling value proposition for nursing home leaders and associated print and digital communications that would be shared with provider decision makers through a variety of channels.
The steps or stages of full PELI implementation could guide policymakers on how to evaluate and incentivize provider participation/adoption. For example, pay for performance initiatives could be tied to evidence that providers are making progress through the steps or stages of implementation. Higher levels of implementation could receive more reimbursement than lower levels of implementation as evidenced by the Kansas PEAK 2.0 initiative. In addition, the case studies would be useful to policymakers and providers as examples of how nursing home providers were able to implement the PELI given the similar contexts of the regulatory environment and nation-wide staffing shortages. Other stakeholders we have worked with include Ombudsmen and family members. Ombudsmen are well-positioned to recommend our work to nursing home providers when they visit communities about a complaint. Family members can advocate for their loved ones who live in the nursing home setting and can complete a PELI on behalf of their loved one who many not be able to communicate their preferences to care partners. We know we need both the 30,000-foot view for decision makers as well as the specific details for how providers successfully implemented in order to increase uptake of our evidence-based program.
Ohio Department of Aging (ODA)
Principal Investigator: Jennifer Heston-Mullins
May 31, 2024 through June 30, 2025
Ohio Long-Term Care Research Project
An Aging Ohio
Ohio is aging along with the nation and much of the world. With more than 2 million people age 60 and older, Ohio ranks sixth nationally in the size of the aged population. In 2010, nearly 20% of the state’s population was over the age of 60. By 2050, we’ve projected the 60 and older population could make up almost 30% of the total population.
Research-Driven Planning & Development
The Ohio legislature established The Ohio Long-Term Care Research Project in 1988 in response to the growing older population. Through this project, we provide applied research and policy analysis. In addition, we provide technical assistance, training and education for Ohio legislators, public administrators, service providers, and the community at large.
Recently published research
- Current Workforce and Quality Challenges in New York State Nursing Homes
- Exploring the Criterion Validity of Pragmatic Person-Centered Care/Culture Change Measures
SEE MORE ON OUR PUBLICATIONS PAGE
Additional Resources
- Ohio-Population.org: Explore population characteristics such as age, disability status, income, marital status and education among Ohio's 88 counties.
Changing Minds: An Introduction to Person-Centered Care
This video is a resource for those wanting to learn more about person-centered care principles or for those wishing to teach others about aspects of person-centered care. In 2013, researchers from Scripps focused on direct care workers and best practices of high performing long-term care organizations in Ohio. (Common Sense for Caring Organizations: Results from a Study of High-Performing Home Care Agencies and Nursing Homes; Straker, J.K., Boehle, S. G., Nelson, I. M., and Fox, E. M.; January 2013; URI: http://hdl.handle. net/2374.MIA/4953). An interesting finding emerged from this research: almost all of the high performing organizations, coincidentally or not, provided person-centered care. Person-centered care seems to benefit care recipients, employees, and organizations overall.
One of the main markers of person-centered care is the knowledge and understanding a worker has for the elder in his or her care. In an industry that has often been focused upon quick and efficient completion of tasks, it may seem unusual for workers to take time for unrushed conversation with an elder. This time of focused conversation is actually an important foundation of person-centered care.
Especially for those who have spent time learning and working in the traditional model of care, person-centered care requires a “re-framing” or a different way of looking at situations. This video was made as a tool to better understand some basic ideas about person-centered care.
Changing Mind
Who is this video for?
Our video is for a variety of audiences. Potential viewers include:
- Direct care workers in training
- All staff in organizations beginning to adopt person-centered practices
- New employees in person-centered organizations
- Families of consumers served by person-centered organizations
- Board members of person-centered organizations
- All staff in person-centered organizations needing a “refresher” on PCC philosophy and practice
How to use this video
The video can be viewed in its entirety, or viewed in three separate segments to stimulate discussion and presentation of other materials and information. Groups or individuals can answer the questions posed in the training guide.
What Matters Most: A Guide for My Support and Care
The What Matters Most Guide is a tool for gathering and organizing information to guide the delivery of person-centered care at home.
The What Matters Most (WMM) project was funded by the Ohio Department of Aging (ODA) with the goal of developing a tool for the PASSPORT program, Ohio’s over-60 Medicaid home- and community-based (HCBS) waiver program. ODA is committed to delivering person-centered vs. agency centered care and the WMM tool was developed as a practice tool to promote preference-based person-centered care. In developing What Matters Most, we collaborated with two Area Agencies on Aging (AAA7 in rural Southeastern Ohio and Western Reserve Area Agency on Aging in urban northeastern Ohio.)